An international study is being launched today by The MS Living Social Impact Study Team, an independent Canadian research group.
This study will examine the social disruption a diagnosis of Multiple Sclerosis has on victims and their families, from the perspectives and viewpoints of the people who are wrestling with MS on a daily basis.This is a project by persons with MS for persons with MS that is concerned exclusively with the social aspects of this disease.
This information will be used to prepare a “User’s Handbook” with practical advice that comes from the people who know the issues best,providing workable information for people searching for practical advice on how to live successfully with MS, written in plain language and available in a number of formats at no cost.
MS is a disease with an incredible number of variations, no one approach will satisfy the needs of everyone in the study. A segmented format is being applied to ensure that each person need only complete those sections of the survey that directly relate to their personal experiences, accommodating the variations in how the disease manifests itself in different people and changes over a course that can span several decades.
This project is international in scope, and participants with MS and their families are invited to take part in this study. A website is under development for MS Living, until it is operational all communication should be via e-mail to firstname.lastname@example.org . The survey and its results will be available on the website in Word 2003 and text format.
Other sections will deal with a number of topics that are integrally important to persons impacted by MS.